One of the most heartwarming stories that swarmed the Internet recently is the one of a 7-year-old boy whose unique bravery and creative mind is helping his sick best friend tackle a deadly disease. The now 7-year-old boy named Dylan Siegel wrote a special children’s book titled “Chocolate Bar” which is a term meaning “awesome” to help out the family of his best friend Jonah Pournazarian.
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Jonah suffers from an extremely rare condition called glycogen storage disease (GSD). His condition causes his blood sugar to constantly drop to dangerous levels. The young 8-year-old boy needs constant supervision and receives his food from a tube directly attached to his stomach. Although there is no known cure for the disease the researchers from laboratory in Gainesville are on the verge of discovering a new experimental medicine. All the funds raised by selling “Chocolate Bar” are going for medical research.
Hopefully very soon Jonah will also have a new and more effective feeding equipment that does not require him to be hooked up to a tube every few hours.
A guy who enjoys practicing all kinds of sports and spending time out in the open. Competitive, energetic and a reliable friend, "X" motto is "when life gives you lemons, make yourself a lemonade".